Cystic fibrosis is a genetic disorder that affects mostly the lungs, but also the pancreas, liver, kidneys, and intestine. Long-term issues include difficulty breathing and coughing up mucus as a result of frequent lung infections. Infection control guidelines do not allow for CF patients to be together in the same room, making it difficult for patients not to use each other for support while inpatient at the hospital.
• Over 50% of CF patients are over the age of 18.
• Many clinical studies are ongoing to help find a Cure for CF.
The Hartford Cystic Fibrosis Inpatient Fund is a 501(c)3 Non Profit Cooperation that was founded in 2015 by The Adult Cystic Fibrosis Board led by CF Patient Jason Reid. The Adult Cystic Fibrosis Board, made up of CF patients and caregivers, was formed to address topics of particular concern to the CF community. The board improves quality of care in partnership with the staff of the Marie and Raymond Beauregard Adult CF Center at Hartford Hospital. Our most recent accomplishment is the launch of a program called "CF Listeners." This mentoring program builds peer support among Connecticut CF patients and families. Program members answer questions and serve as role models while offering encouragement, guidance, suggestions, and referrals to resources. Families with a CF newborn child or CF’ers starting new chapters in their lives are encouraged to contact us via email at Amy.Mueller@hhchealth.org. You'll get your difficult questions answered by an actual CF patient or social worker. Money raised by our fund provides gifts of compassion for CF patients and families while away from home. DONATE NOW.
You can make a positive impact on the lives of CF Patients.